Publications

The publications below are based on the findings of the 2014 and 2011 editions of Raising Expectations: A State Scorecard on Long-Term Services and Supports for Older Adults, People with Physical Disabilities, and Family Caregivers. These publications were produced by the AARP Public Policy Institute with support from The SCAN Foundation and The Commonwealth Fund.



Case Study: Connecticut

This report presents the findings from a case study of Connecticut, which is a high-performing state undertaking a systematic effort to shift its reliance on nursing homes to the use of more home- and community-based services. The study was conducted following the release of the 2014 State Long-Term Services and Supports Scorecard 1 to understand factors that lead to improved performance on measures of long-term services and supports (LTSS) for older adults and people with physical disabilities. Connecticut.

Effective Transitions between Care Settings

Unnecessary and avoidable care transitions, which occur when people are moved from one care setting to another, can result in adverse outcomes, especially among older adults and people with multiple chronic condition. The 2014 State Scorecard on Long-Term Services and Supports is excellent tool for measuring state progress in care transitions.

Case Study: Mississippi—How One State Improved

This case study of Mississippi was conducted following the release of the 2014 State Scorecard on Long-Term Services and Supports to understand factors that lead to improved performance on measures of long-term services and supports (LTSS) for older adults and people with physical disabilities.

Access to Unemployment Insurance Benefits for Family Caregivers: An Analysis of State Rules and Practices

Drawing on legal analysis, in-depth interviews with advocates and unemployment insurance officials, and analysis of available data, this paper presents detailed information on the policies and practices in place in state unemployment insurance programs that provide potential temporary financial assistance to family caregivers.

An Exploratory Study of Caregiver Stress, Fatigue & Worry in the United States

This exploratory study looks at the relationship between caregiving and well-being. The analysis finds that caregivers, particularly women, were more likely to experience stress and worry than non-caregivers, and less likely to feel as if they had enough time and were well-rested. The paper presents findings and issues for future research.

A New Way of Looking at Private Pay Affordability of Long-Term Services and Supports The affordability of private pay services is an important component of long-term services and supports system performance. This Insight on the Issues presents data on private pay affordability for every state and more than 400 markets in the United States.

Protecting Family Caregivers from Employment Discrimination This Insight on the Issues explores eldercare and the workplace. It highlights the realities of changing demographics and issues affecting working caregivers of older adults. It defines family responsibilities discrimination (FRD), explains why FRD is a policy matter, and describes the types of workplace discrimination encountered by working caregivers.

Fact Sheet: Protecting Family Caregivers from Employment Discrimination This Fact Sheet highlights issues affecting working caregivers of older adults.

Assessing Family Caregiver Needs: Policy and Practice Considerations This Fact Sheet defines caregiver assessment, which is a systematic process of gathering information about a caregiving situation to identify problems and resources. Effectively assessing and addressing caregiver needs can maintain the health and well-being of caregivers, sustain their ability to provide care, prevent or postpone nursing home placement, and produce better outcomes for the care recipient. (July 2012)

Assisted Living and Residential Care in the States in 2010 This Insight on the Issues discusses the availability of assisted living and residential care, which represent a critical component of the long-term services and supports (LTSS) system for older adults who cannot live alone, but do not require the skilled care provided by nursing homes. In 2010, states reported a total of 51,367 licensed residential care settings with a total capacity of 1,233,690 beds—a dramatic increase from an estimated 1,046,631 beds in 2007. (July 2012)

The State of Measurement of Respite Care This Insight on the Issues examines respite care, or temporary relief for caregivers from caregiving tasks. It is the service strategy most commonly offered to support family caregivers and is available in all 50 states. However, definitions of respite vary among programs and states, and quality and completeness of reported data are often lacking, making rigorous comparison among states impossible. This report describes the main sources of publicly funded respite care and presents data for the year 2007. (July 2012)

Case Study Overview While the Scorecard started a discussion about state long-term services and supports (LTSS) performance, it did not explain why states ranked high, low, or somewhere in between. Therefore, the AARP Public Policy Institute, with support from The Commonwealth Fund and The SCAN Foundation, undertook a series of case studies to provide a deeper context for understanding state performance for the baseline Scorecard. This paper presents an overview of the findings from the case studies. (May 2012)

Case Study: Minnesota This case study looks at Minnesota, which ranked first overall in the nation for long-term services and supports. (May 2012)

Case Study: Georgia This case study looks at Georgia, which—like most southern states—ranked in the lowest quartile of state LTSS performance . (May 2012)

Case Study: Idaho This case study looks at Idaho, which scored in the upper-middle range of overall LTSS performance. (May 2012)